EDS Unplugged

Episode 4: Movement Therapy and Support Aids with Jeannie Di Bon Hosts: EDS Unplugged - Marcia Brock & Cassandra A Campbell Length: 50 mins In this episode we're so excited to be joined by Jeannie di Bon, Movement Therapist and fellow hypermobile EDS'er. As well as being a movement therapist, Jeannie is an educator, author and founder of The Zebra Club, an online platform supporting people with hypermobility and EDS globally. She developed the Integral Movement Method (IMM), an evidence-based approach that bridges rehab, Pilates and nervous system regulation to help people move with less pain, control and confidence. Jeannie is an international speaker and researcher passionate about improving care and access for the hypermobile community. RESOURCES Jeannie Di Bon website jeanniedibon.com Hypermobility Channel http://www.youtube.com/@JeannieDiBonHypermobility Dr. Jane Simmonds Jane Simmonds | About | University College London Dr. Leslie Russek Leslie Russek Ehlers-Danlos Support UK (EDS UK) The Ehlers-Danlos…

In this episode, Cassandra and Marcia speak with Jan Groh, fellow EDSer, advocate, creator of the Oh Twist blog and co-author of the EDS Toolkit. Transcript: https://www.chronicpainpartners.com/episode-3-neurodivergence/ Links to Resources shared in this episode: OH Twist https://ohtwist.com/ X (Twitter) OhTWIST.bsky.social now too (@H2OhTwist) / X FB PUBLIC OH TWIST PAGE about EDS MCAD POTS info | Facebook Patreon Jan Groh OhTWIST author | Patreon ORGS/PROJECTS Ehlers-Danlos Support UK https://www.ehlers-danlos.org/ EDS Toolkit https://gptoolkit.ehlers-danlos.org/ Dr Emma Reinhold X (Twitter) https://x.com/DrEReinhold?t=E2zNEED42vobymTA5fBhWA&s=09 Medical University of South Carolina (MUSC) https://www.musc.edu/ The Ehlers Danlos Society (TEDS) https://www.ehlers-danlos.com/ HEDGE study https://www.ehlers-danlos.com/the-hedge-study/ Norris Lab https://www.thenorrislab.com/ Kallikrein Gene Study https://www.eds.clinic/articles/norris-lab-researchers-discover-hypermobile-eds-gene Dr Byers University of…

In this episode we're so excited to be joined by Donna Sullivan, advocate and filmmaker behind the powerful documentary "Complicated." Donna's work shines a light on the lived experiences of those living with EDS and chronic pain, especially children — and she's using film as a tool for empathy and understanding. Transcript: Chronic Pain Partners Links to Resources shared in this episode: Donna M. Sullivan, Director, Patient Advocacy: https://linktr.ee/dmsconsulting Pathways To Trust: https://www.pathwaystotrust.org Additional Board Positions: The Coalition Against Pediatric Pain https://tcapp.org The Connective Tissue Coalition: www.connectivetissuecoalition.org Mito Action Advocacy Support: https://www.mitoaction.org/resources-planning/medical-child-abuse/ EDS Society Ahead Coalition: https://www.ehlers-danlos.com/ahead-coalition/ The Do No Harm Project: https://www.thedonoharmproject.com Open Eye Pictures: https://openeyepix.org Film "Complicated": https://openeyepix.org/complicated FB page:…

We are very pleased to announce the first episode of the EDS Unplugged podcast, brought to you by Chronic Pain Partners. In this episode, hosts Cassandra and Marcia speak with Kate Schultz about what we do here at Chronic Pain Partners and living with EDS in the run up to Invisible Disabilities Week. www.chronicpainpartners.com Episode Transcript: https://www.chronicpainpartners.com/eds-unplugged-podcast-episode-1-invisible-disabilities-awareness-with-kate-schultz/